I am a husband, father, and rare disease advocate. After working for 22 years in the information technology, law enforcement, nonprofit, and security industries, my body couldn’t take the effects of my rare diseases anymore and I had to stop working. After years of trying to figure out what was wrong, I now know I have recurrent meningitis and periodic paralysis. Chive Charities was willing to help me get an Action Trackchair to be able to go outside and still live life with my family. This site is my way of sharing my new adventures with the world.